I do not feel well today. My stomach is going crazy. I feel feint. My head hurts on and off. Never extremely painfully but it never really leaves either. And on top of all that I am nauseous.
The tape which secures the end of my PICC line to my arm so that the end doesn't flop around and get caught on things had such strong adhesive that it pulled of skin. The PICC line itself has been causing me a great deal of irritation. It started to itch extremely badly after the dressing change yesterday morning. Last night it was difficult to sleep because the insertion site hurt/stung like crazy, and this morning it was bright red. Oh, and there is something that looks a lot like pus coming out of it.
To add to everything, my leg hurts. I wish I knew for sure if the infection is gone. My next scans should be in a 3 or 4 weeks. Infectious disease will schedule them at my next appointment on June 14th. Together, not knowing and waiting are difficult.
I am not a happy camper today. One my friends wants to plan a camping trip for the end of summer, so sometime in August. A bunch of us did this after high school graduation a few years ago and it was a huge success. He said he hopes I can come, but I doubt it. If all goes well my line will be pulled July 17th. Two weeks after that I see my surgeon for followup, and then probably mid August I will have another appointment with infectious disease. I will need to stay out of the sun for a while too, as I will probably stay on the oral Septra longer, which makes it extremely easy to burn. The whole summer feels like a write off. No fun for me. It sucks watching your friends move on with their lives while you can't do nearly half the stuff they do. I am jealous. I want to be healthy like them.
Well , the no fun part is not completely true. I will find other fun things to do. It just sucks that things are limited due to the bone infection. And my not feeling well today doesn't help my attitude either. My apologies if this was a stupid useless post to read, but I really needed to rant.
No comments:
Post a Comment