Friday, March 11, 2016

Pre-surgery thoughts and fears

Surgery this morning. I am tired, nervous and hungry - a bad mix of things to feel before any big day, not to mention one where someone cuts you open and tinkers with your insides.

If I wasn't always so damn cheerful, I would be pretty cranky right now. Instead I am filled with jittery energy. Everything can be turned into a bad joke, anything is reason to be morbid and twisted. I think that it is a coping mechanism. I can't sleep. I can never sleep before surgery. As always, there are thoughts of just not going. With the last surgery, the big joke was that mum and I would just keep driving. Just stay on the highway until we hit Barrie. Then what, who knows... We joked about it for weeks. We didn't do it, of course, but the running joke did make us laugh and that definitely eased some anxieties. But there is no joke about skipping surgery this time, just the knowledge that when I wake up the fixator will still be attached to my leg.

I was so sure that the next surgery I had would be to remove that shiny blue frame. So long monotube triax! The thought of anything different is almost incomprehensible, unbearable. I am ready for my leg to be mine again, not heal together with pins, clamps and rods. in a striking contrast, I don't think I can imagine my leg with out the fixator anymore. Those half pins have become part of who I am. I Aside from this, it just seems wrong that it will still be there, through my tissue and into my bone, when I wake up from surgery. But the ex fix will stay on for at least six more weeks. Some people recover from a broken ankle in that amount of time. I wish I had healed that quickly, all those years ago.

I am tired and I don't want to do this anymore. I am so worn out. I am too young for this. This experience ages some one so so much. I am doing things my peers don't even know exist all in the name of my health. Ironically,  surgery makes me feel like a child - a scared little child, powerless. I have to do something I don't want to because it is good for me, because someone else says so. That makes this sound like a child having to eat their vegetables. I wish things were that easy. But surgery doesn't just leave a bad taste in your mouth; it causes pain. Loads of pain; pain I cannot adequately describe. The reward is so much better than getting dessert; it is a lifetime of being able to walk. I need to be able to do that one simple thing. This whole thing has been so incredibly traumatic. Even if it has become normal, that doesn't change. Nothing will undue how this has affected my life, changed me, denied me a normal young adulthood, but being able to walk again will be a pretty good consolation prize.

And there are the thoughts - What if this doesn't work? What if the infection returns? What if the new bone doesn't heal properly? What if this heterotopic ossification wrong odd kind of bone comes back? On a side note, it's getting less fun to say that. The seriousness of it and the surgery looming ahead have sunken in. What if I don't get the feeling in my foot back? What if I get a new infection? So many questions, so many fears.

But I am a big girl. No, I am a gown woman. I might not fully realize it yet because so much of the last decade has been filled with medical things rather than focusing on the things young people do as they move from childhood to adulthood, but it is true. I am smart; I can take care of myself: have lived alone: I have a university degree; I am mature and perfectly capable just like my peers. I am a grown woman and I will do what I have to, even though it is unpleasant, because I know it is good for me. I don't need someone to tell me that anymore, not like a child would. As surely as the sun will rise, I will walk (erm... hop with my trusty crutches) into that OR this morning. I might not like it, but it will be okay. I has to be. Even if it isn't, we will make it okay somehow.

But then, I am still afraid.

4 comments:

  1. Hi chicks ... hang in there

    Thinking of you and sending positive healing vibrations over the miles ... the candles will smile for you ..

    (((hugs)))
    love barbs

    xx

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    1. Hi Barbs!

      Thank you for the positive vibes and the kind words =)

      Things went much better than ai anticipated.

      My surgeon was able to clean out all the unwanted bone.
      He was also able to take out the sliver of bone thst was sticking into the back of my leg. As he suspected, it was pressing on a major nerve in my leg. Now that it is gone, he hopes that the feeling in my foot will come back once the nerve has had several days to recover.

      I am insanely tired now and have slept almost continously since the time I got home late yesterday afternoon. Pain hasn't been too bad though, which is good. I'm still on the long acting pain meds I have been on since I got the fixator and got Dilaudid for break through pain.

      Some parts of the surgery went really well (surgery itself, the staff who spoke with me in the holding area before surgery). But the women in same-day surgery (except one who was absolutley lovely!) are horrible. My mum had to fight with one of them to call my doctor when the dressing on my leg got soaked in blood after I stood up for the first time after surgery. My surgeon said he hadn't expected that to happen and took some time figuring out what to do and who I should contact if it would happen again. Once she saw that I had a good relationship with my doctor, the nurse became very friendly all of a sudden. That was a bit strange, really.

      Anyways, it is over and I am home. Now we just wait til the fixator can come off! Hopefully only seven more week!

      *hugs*
      Sunshine

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  2. Good news ... what a relief !

    It's these unexpected twists that are the most stressful -- usually one can mentally prepare but this one came totally out of the blue
    whew *sigh of relief*
    i'm so pleased that the surgery went well and that after that bump in the road, you can go back to the business on the table and continue growing bone.
    onward and forward

    yes, the day surgery ward is different - but let's face it, i imagine the staff have more than their fair share of difficult patients ..

    so sleep well, dear - you deserve it after the tough week you've been through

    bests, barbs

    x

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    1. Yes, a relief in deed. By biggest fear was that this heterotopic thingy would end up putting the entire bone transport at risk and that I would have to start all over.

      This was completely out of the blue. It is so rare that my surgeon didn't even think about it. If I ever need more surgery, I will never complain about having a month or more to prepare again.

      As of Friday, I had 1.5cm of bone left to grow. Should be done on march 31st. Then the hardest part - compressing the whole thing. My surgeon wants to do this for 2-4 weeks, preferably 4, but he says it really will be a matter of how long I can stand the pain. *Eep* Why the hardest part has to come at the end when I am already tired,sore and fed-up I will never know...

      I completely agree with you about the day surgery staff. They must see a lot of horrible, pushy, or unpleasant patients. I don't envy there job. It seems like they are under a lot of stress and don't get much gratitude.

      The good part is, like you say, it's over now and I can get back to growing bone (and the lovely, smiling, friendly people at the fracture clinic).

      Sending you good thoughts and lots of sunshine (pouring rain here!).

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