Friday, December 04, 2015

Miscellaneous

No update about surgery and the fixator right now; just some random stuff that happeneded today.

1. Me chilling out in my bed with my fixator and a mountain of pillows. This is the new normal. While I did spend a lot of time in bed between the surgery in August and the one last week, I was a lot more active, even venturing out to the zoo, Ikea, and the mall.

2. My brother decided it would be fun to play with my walker when he got home after work. He decided to hobble around in the hallway outside my room with it, to which I responded "Come back! You've stolen my legs!!!"

This is my walker. No, I don't feel like a little old lady like I did the last time I had to use a walker. This was in 2006 when I broke my right leg and left ankle and was transitioning from a wheelchair to crutches. Given everything that has happened, I have gotten over myself. Yes, I use a walker like a little old woman and am slow as one too... and cross stitch all day... and have set my ultimate goal as being able to carry a cup of tea. But I don't feel old. I feel like a young adult who has been but through an extraordinary amount given what started out as a simple broken leg who is now trying to put her body back together again, and that just so happens to require a walker.


3. Sinterklass Feest, kind of like the Dutch version of Christmas regarding gift giving and Santa is tomorrow. Being from the Netherlands, I like to keep up this tradition going. I knew that I would be unable to prepare anything for it after the ex fix surgery last week so wisely did last week Sunday. My cunning plan really involved me crutching around the dollar store trying to carry as much candy as possible (not much when your hands are busy supporting your whole body) while my mum waited in the parking lot in her car...). The next challenge was setting stuff up before tomorrow morning. My goal was to sneak into the living room in the middle of the night and fill a shoe for each person. This didn't happen. The ex fix surgery has demoted me from crutches to a walker (at least for the time being) so down the stairs to where we keep our shoes was not an options (narcotics and the walker makes stairs my nemesis). Instead I just yelled at my mum and brother to bring me a shoe, stat! close their eyes, and wait while I filled them with goodies. They loved it! Not as nice as having them find everything nicely set by the Christmas tree in the morning, but still fun.
You can see my fixator poking out at the bottom.
4.  I had my first home visit from physiotherapy this afternoon. I can't do much in the way of exercises because I am non-wait bearing, but the physiotherapist recommended some basic things to do to try to keep the inevitable muscle atrophy to a minimal. She will come back next week to see how things are going. Other than what she showed me today, there is not much more to do, so she will close my file in a few weeks and I will continue to do these exercises until the fixator comes off in March or April. At that point I will get physiotherapy visits again. It is at that time that the real work regarding physiotherapy - gaining back muscle strength - begins.

5. My mum and I were curious if my fixator was magnetic or not so we tried to stick a bunch of magnets on it. It's not. Later on I found some information about the ex-fix I am currently sporting online and read that "it is made of nonferromagnetic and nonconductive materials". So we really didn't have to test this ourselves because the information was ridiculously easily available on the internet. But still, it was a pretty odd and kind of funny scenario with us bent over my leg sticking magnets to different parts of the fixator to see what would happen.

6. After the whole magnet thing, we tried to figure out what the fixator is actually good for (you know, other than regrowing my tibia so I can walk again one day!). We figured the best use would be a game of ring toss since the pins stick out so far. Another option is some twisted version of pin the tail on the donkey... except it would be stick the bandage around the pinsites. Or take the staples out while blindfolded (mum suggested this one). For those more crafty among us, you could probably use the pins for some loose kitting project or something similar. We haven't come up with anything else so far, but I'm sure we will over the next four months.

7. There was a moment after dinner when I was sitting at the kitchen table about to use my trusty little wrench to turn the knob at the end of my fixator when the ridiculousness of the situation hit me. Ridiculous might not be the right word, but I don't know what else I would call it. It was more of a "Whoa, this is insane moment”. A thought that is interpreted as “you are sitting here using a tool to twist what is pretty much a very long nut and bolt together to force two pins sticking out of your skin to move a piece of bone inside your leg in order to tempt the bone one on the other side to grow towards it, thus filling in the gap". To any other person this would seem crazy and unheard of, but here I am in my own home, having just eaten and about to play a game of Yahtzee, attempting to regrow bone, and it is completely normal.

Edit: the word I was looking for is surreal. Using a wrench on a metal contraption attached to your leg in order to regrow your bone feels very surreal.  

6 comments:

  1. Looking good sweets .....
    ummm crafts and fixators ... you could do 'yarnbombing', like the knit graffiti artists who sneak out at night and yarnbomb anything from poles to bicycles to statues, trees and cover them with wonderful knit pieces .. making street art which is 'warm and fuzzy' :)

    the poles stick out a bit, but i guess a long skirt could cover it, if you're using the walker ( my walker has morphed into a handy drier for washing --- takes up very little space. the crutches i gave away)
    i wore very baggy harem-style pants - it was a half circle at the knee and then two pieces which met in a triangle half way down my leg, and i was fortunate in that it was summer, so light cotton baggy pants - ideal!
    track suits pants, with an extra piece sewn in could work for you, but i imagine you and your mum
    have plenty of ideas, and the skills, to design an ex-fix wardrobe ..

    i see your brother is an eternal optimist -- the size of the boot, even half full gives quite a hefty amount of swag

    well, it's a matter of getting on with it --- back on the roller coaster, but there's an end in sight . One day at a Time.
    Do you enjoy comedy --- i got onto the laptop and found fabulous comedy on the radio, youtube etc which helped during the routine tasks and especially the physio which becomes so repetitive.
    also, as one's world shrinks it's a good time to enjoy the little things in life - the beauty of a flower, the dew on a spider web, a ray of sunshine.

    stay strong dear

    hugs,
    barbs,
    x




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    1. Hi Barbs!

      Unfortunately, I don't knit, so I can't do any yarn bombing, but my mum does... so maybe I can rope her into doing something for me. At the moment my plan it to decorate the fixator and walker for Christmas. Tinsel on the blue part of the frame and small ornaments hanging off the pins XD

      I am keeping things super easy in regard to clothing. I have about four pairs of pajama pants that fit over the pins, and I thinkg one or two pairs of pants (althought I have not tried them yet). For the most I will be sticking to skirts with a thigh high sock on my good leg. Mum and I are still trying to figure out how to make something to cover the fixator. We went to the mall today and saw some lovely fur lined scarves, but they were to loose/big to properly fit over the fixtor, but we left with several ideas.

      Like you, I have also realized how handy a walker can be when it comes to clothing. I have been using it to keep my clothing off the floor or to carry clean towels and pajamas to the bathroom.

      My brother is an eternal optimist, always looking on the bright side. I don't no how he does it. I was generous with the candy but not that generous... I didn't shove any into the foot part of the boot. But still, he did get quite a bit. Let's hope he doesn't get any ideas to buy knee high boots for next year...

      The fixator definitely requires a day at a time outlook. I have heard from others that this is a "two steps forward, one step back" kinf of process. So far things are going well, but I keep reminding myself not to get to confident and feel invincible. I am sure there are also bad days ahead, but will take them as they come.

      I love comedy. Laughing definitely helps me get through this. There isa crazy series on Netflix called Black Books that I watch if I am feeling to stressed.

      You are so right about the little things. I was sitting at the kitchen table this evening, looking at the Christmas tree twinkinling and drinking a cup of tea. I felt so calm and happy, despite the whole fixator thing. The little things really make life beautiful =)

      Thank you for all the kindness and support. It means a lot to me =)

      Hugs,
      Sunshine

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  2. ps ---- once i got used to the ex-fix, i used elbow/forearm crutches throughout, no problem !

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    1. I have been debating about whether I should get forearm crutches for a while now. I have been using the same underarm crutches since I first broke my leg. They have their pros and their cons. I have recently started getting numbness in my right hand when I use them,despite how careful I am not to lean on the crutches with my armpits. Did you experience any numbness with the forearm crutches?

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    2. Hi there ....

      congrats on getting out to the Mall, super to be part of the merriment at this time of the year ----

      i prefer forearm crutches - less bulky, more manouverable, give a sense of 'agility', take up less space in restaurants, etc ... a certain sense of 'freedom' and mobility
      i did not experience numbness - i did buy a pair of 'cycle gloves' which are padded and helped to prevent blisters developing on my hands.
      i was also nervous about going down stairs, but i had a good physio and he helped me tremendously --- so i did get over that hurdle ...

      it was definitely a good decision for me - let's face it, with a BL one wants the have the greatest sense of freedom possible

      why do you use underarm ?
      and have you tried forearm ? they probably feel less stable initially, but once you get used to them, no problem !

      stay well dear,
      cheers, b

      x

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    3. Hello!

      Sorry for the late response.

      Thank you for the advice about crutches. The forearm crutches seem really appealing when you mention the sense of freedom and mobility. Knowing me, that might actually be a bad thing. I was quite the acrobat on my underarm crutches before the ex fix surgery, swinging around, doing all sort of hops and skips... more agility might be the last thing I need!

      I also have cycling gloves for those days I am on my feet for a long period of time. Regardless of this, I have built up quite some calluses on my palms.

      We don't really see forearm crutches in Canada. The hospitals and most health supply stores only supply the underarm type. I read about the forearm ones a while ago online and found a lot of people said they are better for long term use. I haven't tried the forearm ones because I haven't been able to get a hold of any where I live. I wanted to read up a bit more on what other people thought of them before I ordered a pair on line... not cheap with shipping and handling, plus the Canadian dollar is kind of tanking right now. It also seems like a big expense since I am not working at the moment. I will ask my surgeon what he thinks on Friday. I get the numbness in my right hand when I use my walker too, so I am not sure if I would get that with the forearm crutches as well.

      I hope you are doing well and able to enjoy the Christmas festivities!
      Sun shine

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